Changing a will can seem daunting but it’s actually really simple to do.
With your support we can do more With your support we can make this happen. They ensure that our unique support can continue for many years to come. This is why Gifts in Wills are so vital to our work, and so appreciated. We know that this vision is some time off but we are committed to making it happen. Rainbow Trust is working towards providing this future - where every family who has a child with serious illness has access to a Rainbow Trust carer. A future where families didn’t have to struggle alone. Our vision for the future Imagine a future where every single family who has a child with a life threatening or terminal illness had the support they needed, when they needed it. Why Leave a Gift in Will to Rainbow Trust Zachary’s diagnosis Zachary was a surprise pregnancy. We have to be agile to manage whatever comes up because not enough is known about DBA, nothing is normal. We are constantly planning around her needs and being her champion as DBA is so rare that the specialist doesn’t know everything, so I keep in touch with Facebook groups and other mums of children with DBA. No two people are the same so we don’t know what her path will be - whether she’ll need a bone marrow transplant in the future or she’ll need a different treatment, we don’t know. Esther had a blood transfusion every month for the first year of her life – it’s like putting petrol in the car, it became normal. It’s an extremely rare disease, only 125 people in the country have it. Diamond Blackfan Anaemia (DBA) was mentioned. Looking back at photos, she was definitely pale. When Esther was six-weeks-old, we were called back for a routine blood test and we found out she was very poorly. Clare and Ben have three beautiful children Connor, Esther, and Zachary.
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